Managing Chronic Conditions and Pain in the Creative and Cultural Sector
The concept of managing pain has been a cornerstone of my work for many years, evolving into a focused effort seven years ago when I began delivering wellbeing and pain management sessions to the community members of OSCAR Birmingham. However, this commitment runs much deeper, it has been a guiding principle throughout my life.
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Over three decades ago, I facilitated art workshops for organisations like Birmingham Rathbone Society, Victoria School in Northfield, and Artlink. These experiences, combined with my role as a college lecturer, allowed me to work closely with children and adults with Special Educational Needs (SEN), Autism Spectrum Disorder, Multi-Sensory Impairment (MSI), Physical Disabilities (PD), and Severe Learning Difficulties (SLD). Through these roles, I have witnessed firsthand the transformative power of creative and educational approaches in managing pain and enhancing wellbeing. This lifelong commitment continues to inspire and shape my work today.
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This concept has consistently guided my work as a community developer, empowering individuals to embrace the benefits of activity, movement, and connection with their environment. As a producer, I have also championed the wellbeing of artists, encouraging them to prioritise their mental and physical health, something often overlooked in the creative industry.For me, this is not a trend or a fleeting project. It is a deeply rooted passion and a way of life.
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As my invisible illness became more visible, I encountered subtle but hurtful micro-aggressions, jokes, dismissive comments, and biases from individuals who, given their roles and positions, should have known better. These experiences of being treated differently in a negative way were why I initially kept my health condition private, and why others don’t divulge their chronic pain and long term health conditions too.
The funding I received from the WMCA Activate Skills Development Grants allowed me to work with a mentor, Suzanne Alleyne, resulting in a significant shift in my perspective. This mentorship supported me to take the right steps to develop and lead on a program specifically designed to support individuals living with chronic pain and long-term health conditions. This initiative aims to leave a lasting legacy, fostering inclusive workplace practices and creating meaningful, long-term benefits for those facing similar challenges.
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The insights gained from consultations will shape the goals, objectives, and outcomes of a community interest company Roots To Wellness I established in June this year. This company will champion advocacy, wellness, creative practices, and innovative strategies to address the needs of individuals with invisible physical disabilities.
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Now, the next phase of this journey begins, not just for me, but for those who choose to join me in advocating for change and equity. Together, we aim to ensure that individuals living with invisible disabilities can work with the dignity, respect, and support they deserve.